Page Dedicated to Daniel HOW LIFE WAS
My name is Daniel.
I was born 23rd April 1997
I have a condition called Pseudo Trisomey 13 ( Patau Syndrome ). I am the only child alive in the world with this pacific condition. No other has been traced to date.
Doctors said before and after I was born I would not survive but I did and here I am today.
I am unable to walk and talk without help. I am a very happy little boy and enjoy lots of things other boys and girls of my age do.
These include horse riding and swimming. I especially like Bob the Builder, Tweenies and Barney. I also love to watch cars, buses and motorbikes. I can become very excited when these vehicles are about. I also go to Hope House Hospice on occasions to give my mum a rest, here I am made to feel very special and all the staff there makes such a fuss of me.
My mummy set up a trust fund for me so that I can live my life to the full; it has been running since 2001.
The fund buys special equipment for me which can help me get the most out of my life. These things include speech therapy for makaton sign language, speech aids, special learning equipment, a swing, roundabout, bikes, electric car and off road buggy. The last three items help me reach places were I would be unable to go cause my wheelchair would get stuck like on a beach and through a field. I also find them very enjoyable.
The fund also enhances my life at home by buying special equipment for me to enjoy and make my life easier for my mum.
My mum also takes me to special places home and abroad she is a mum on a mission please see Daniels Adventures.
The fund also places me on special programmes such as conductive education and bo- bath. Mummy is also going to take me swimming with the dolphins.
If you have any questions about me or my fund please ask my mum she will be happy to answer.
Donations and ideas on fund raising are also welcome. We also accept items which we can sell in aid of my fund.
Thank you for taking the time to read about me
Love Daniel xxxx
THEY SAY THAT TIME HEALS, BUT THAT IS ONLY PARTLY TRUE, FOR IF TIME TRULY HEALED, WE WOULD FORGET AND THAT WE WILL NEVER DO